I know it’s been awhile since I’ve posted. I thought I could do everything. But I can’t. My first priority is, as has always been my loving “Puppy”, and our time together is growing short. I am his caregiver. I am his wife. And he is the love of my life, so I need not have to elaborate how triply difficult this journey is. Trying to suck it all up 24/7 so I can keep him happy and talk about happy things. I may have done wrong by keeping him optimistic, knowing full well I was lying to myself and him. But I am newly over denial, and reality sucks.
I’ve taken this quiet time out to post here for a bit of this and that, and not quite sure when I will get the time to write again as my husband is in end stages, palliative at home, every day is stolen time. This whirlwind mountain of actual what the fuck, had taken me into a tailspin since the horrifying diagnosis and me trying to make like there was hope when there is none. I will also blame goddamned Covid and no doctor visits because I believe if they saw him in the past year, all the tests would have been done then. So yes, I BLAME COVID, like the thousands of people dying of non Covid ailments because of no doctor visits.
I won’t even allow myself to think of our good times, as that would just throw me over the edge. I function on autopilot. I do whatever I can, and if it means a few weeks of no sleeping, so be it. I’m 24/7. My always strong, smiling, loving husband is like my child now and I continue to fight for him, and I am thrilled at the most amazing doctors and palliative teams of nurses and personal support workers, and our country’s health system. I’m getting a bird’s eye view of what goes on when you’re actually living the experience.
This is the hardest job I’ve ever had in my life. And it’s something you can’t begin to explain. One who has walked the shoes only knows how affecting it is to be an eye witness. I’m an empath. These are the parts in books and movies I squint my eyes at, or fast forward. I feel the pain and the sorrow of others, and it’s cutting. And I’m smack in the middle of it. I cannot allow myself the time to grieve as I’m living it and because I must soldier on. I cannot allow my brain to wander over to the ‘after’ part and all that comes – and leaves, with it. So I don’t focus on it, I just keep to what’s in front of me one day at a time.
So much is going on daily here with nurses and support workers and phone calls and and medical supply deliveries, and I had to call 911 for the last time last Sunday again to try and save him one more time. He came home Thursday by ambulance to live the time he has left, at home with his Cub. I’ve learned to operate in numb-like mode, on autopilot. I dare not take any thought of what will be when he is no more. He is now bedridden since his last return and won’t eat, only sleeps. I thought I was losing him Thursday night, but my warrior husband is still here. He can’t talk but he can nod his head.
We’ve struggled our whole marriage about where we would ‘go’ once we leave this earth, as our religions are different and I never wanted to talk of such things. My bad indeed. But I am grateful to my brother who did the legwork for me, and I have an appointment on Monday to purchase plots ten minutes away from where I live. They have a section for inter-faith marriages – something that was sparse 20 years ago. I’m pretty sure I’ll need a Valium on Monday.
Time is very precious at this time, and I’m plum worn to the bone, so I’m not sure when I will post again. But I wanted to update you all here, as I’ve been getting so many emails, texts and messages of love and support from many of my friends and answer only when I get a short minute. I know my very good friend Sally Cronin has been keeping my online presence alive and I’m sorry I can’t like, comment or share, but just know, I will be back after this journey. I most definitely won’t be the same person as I once was, but surely, I will have much to write about.
Thank you all for your love and support and keep the love coming as somehow, it does help.
Because life is never guaranteed.