Wishes and Prayers, #Health and the Road to Victory

gratitude

Once again, I’d like to thank you all for so many wishes, prayers and good thoughts you’ve shared with me here and in your hearts for my husband’s recovery.

 

I’m touched by the comments I’m still receiving from so many, and dropping by to ask how my husband is progressing. I was going to post earlier this week, but to be honest, I’m superstitious, and I was afraid I’d jinx the progress by talking about it. Now, it’s been one week since my hub has had the paracenteses at the hospital, and although, we’ve still  been running to doctors appointments and therapy treatments almost daily since last week, I’m over the moon to report that although still not as strong yet as he was before, my husband is feeling so much better.

 

After the last drainage, 4 liters of fluid was taken out of him, leaving him with a weight loss of almost 9 pounds. He wasn’t feeling as energetic afterward, as he did the first drainage, and then he had an awfully painful test last Friday, which didn’t help things along, but he could breathe with ease once again.

 

Saturday hub was lethargic, but I was thrilled that he hadn’t gained back an ounce of fluid. Sunday he felt a burst of energy, and insisted that he was taking his car by himself, to get gas and a car wash. I was filled with worry to let him go out on his own, almost feeling as though my child had just gotten his license and was going out driving alone for the first time. But I felt compelled to give him back some independence. I worried the whole half hour he was gone but managed to refrain from calling him.

 

Monday, he finally lost 1 pound. Tuesday he lost 2 pounds. Wednesday, another pound, and Thursday he lost 2 more pounds! Somewhere between altering the diuretic prescription and the I.V. therapy from the naturopath to help push the fluid over to the kidneys, his body began pushing out the excess fluid by itself!

 

I’ve been overwhelmed with happiness for the progress that is finally happening after a 2-month road which seemed to have no end. I was petrified that his body would never cooperate with treatment to rid itself of excess fluids, and that he’d become ‘one of those patients’ who would have to go for drainage every two weeks for the rest of his life.

 

I know it’s early yet, and treatments, fluid retention, and drugs are still being monitored closely by doctors, and ESPECIALLY by me, but the improvements I’ve seen in this past week are nothing short of miraculous. Along with hub’s progress, his personality and sense of humour have also returned. Although it’s still early in recovery to be certain what the status quo will be, I can’t help but feel that this long nightmare is on its way to becoming a distant bad memory.

 

Next week hubby wants to go into work for a few hours on the days he doesn’t have doctor appointments. If I feel he’s up to it I’ll set him free. And I don’t mind saying, I’m happy not to have to be the chauffeur anymore. I hate driving, lol.

thank you so much

Once again I just have to say how grateful I am to all of you for the kindness and support you’ve shown. Besides the worry and fear I lived through these past few months, it was your prayers, comments, and conversations I’ve had with many of you that helped keep me sane and grounded; as though I had a place to come to where my life still felt familiar. I cannot thank you enough, I’m blessed to be part of such a wonderful community of friends. Thank you. ❤

#Healthcare – ‘Lost in the Shuffle’

lost shuffle

 

Tuesday April 19th arrived. I was beyond anger with no word yet from the hospital as I waited for them to schedule the paracenteses to drain the fluid from my husband. This requisition with the added note of ‘ASAP’ was sent out last Wednesday.

 

In spite of my fury, I put on my best optimistic looking face and took hub to the naturopath’s for his next I.V. therapy treatment. Just as we finished treatment and getting ready to leave, my cell phone rang. I grabbed it in anticipation, and was elated to see the call displaying the hospital number.

 

Here’s how that call went:

 

Receptionist:  “Hello Mrs. Gies, this is xxxxxx Hospital calling from the imaging department. I’m calling to schedule your husband’s ultra sound for one week this coming Friday.”

Me:  “Excuse me? You must be mistaken. First of all, he’s not having an ultra sound, he’s already had that. He’s been waiting a week for an ASAP request for a paracenteses. And please, don’t even tell me he has to wait another 10 days!”

Receptionist:  “Oh my, this requisition must have come to the wrong department.”

Me:  “YOU’VE GOT TO BE KIDDING!”

Receptionist:  “I’m so sorry. Let me get this req over to radiology and I’ll call you back.”

Me:  “Thank you! May I ask if there is a number I can have for that department in case I ever run into this problem again or miss your call?”

Receptionist:  “Sure Mrs Gies, here it is . . .”

Me:  “Thank you sooooo much.”

 

Getting that phone number was like striking gold. Previously, Dr. Eric and I were searching around the hospital website to try and find a contact number for the radiology department so we could try and find out what the delay was. But there was no number listed. Understandably, hospital departments don’t want people calling there randomly.

As hub and I were walking to the car, my phone rang again within minutes. I fumbled in my purse to get my phone as my hands were full of bags of new remedies and paperwork. Before I could retrieve it, my phone stopped ringing and went to voice mail.

 

I was so angry I missed THE call. I threw everything on the ground and screamed out loud, “Shit, shit, shit”. And then I proceeded to fish out the piece of paper with the number the receptionist had minutes before just given me. I dialed it and prayed to God that someone would pick up, no voice mail.

 

I was grateful when a woman answered upon the first ring. After her greeting, informing that I’ve reached the radiology department, I told her who I was and that I was sure she had just called me. She confirmed that she had. She then asked me if I could have my husband there the next day at noon. I could have kissed her.

Ironically, we had another appointment with Dr. B at his office the same day as the procedure, in the afternoon, 5 minutes away from the hospital, so that worked out well.

 

 Wednesday April 20th, I took hub for the draining, and Dr. B had authorized that they could drain up to 6 liters of fluid max. He and I both knew there had to be closer to 10 liters of fluid in my husband’s abdomen, but there’s a limit to how much can be drained at one time.

I once again managed to finagle my way into the procedure room so I could be with my husband and listen to the goings on. But I became a bit disappointed when all the radiologist could extract was 4 liters (8 pounds). I’ve heard a few horror stories about some patients whom the doctors couldn’t get any fluids out of, so I was glad for what did come out, although still concerned about the remaining fluid.

 

After the procedure, we dashed over to Dr. B’s office. Hub was sore and exhausted, but feeling some of the pressure off his breathing. Dr. B ordered more blood work to be taken in a few days to test the various levels in his body after the fluid removal. I voiced my concern to him about the mix up with the requisition, and asked him how we were to proceed if and when my husband needed this procedure done again, without long delays waiting. Dr. B told me to monitor hub’s weight. He said he hopes he doesn’t gain it back, but cautioned me that hub may have to have more procedures, but time will tell. Dr. B said if I feel we need another draining done before our next visit, just let his secretary know and he’d push through the requisition himself at the hospital. He also said that if my husband turns out to be that patient who will occasionally need a drainage, he would authorize it so we could then call the hospital direct and make an appointment with them.

 

I’m hanging onto that radiology department’s phone number with dear life!

 

It’s now Thursday April 21st, The Queen’s birthday, my beautiful niece’s birthday, and my husband’s weight hasn’t gone up since the draining yesterday. I am grateful for good days. Tomorrow he goes for an unpleasant test (cystoscopy), booked over a month ago by his urologist. I asked my hub if he wanted to postpone it until he feels stronger, but he wants to get it over with, so I just hope everything goes smoothly and he can rest comfortably on the weekend without any medical drama or added fluid retention. This could possibly be the first weekend since our return from Arizona that he may feel well.

 

This post is a follow up to last week’s https://dgkayewriter.wordpress.com/waiting-kill-healthcare/

 

I’d like to once again thank you all for your wonderful kindness and support through this difficult time. You all know I’m a great believer in positivity, angels, and the law of attraction, so I know all of your good wishes and prayers are being heard because I can certainly feel them.